Saturday, September 02, 2006

Ampligen Treatment? ( Post#4 )

Remember that this is juat a post of my blog, and it evolves, so to see the full story go to: (English) or (Spanish)
My current doc: Josepa Rigau Av Catalunya, 12, 3º, 1ª 43002 Tarragona Spain +34977220358 (I do recommend! hoeopathy and biological medicine, significant improvement)
My previous docs: De Meirleir (, Dra Quintana (CMD), (Lots of medication, antibiotics etc... no significant improvement)

Ampligen & Dr. Lapp ( Post#5 )

On my own initiative, I have contacted Hemispherx Laboratories in order to find out an estimation of when Ampligen will be available in the market, but their answer was that still there is not a date forecast, but it is currently being used as an experimental drug:

"The AMP 511 is a Cost Recovery Program approved by the FDA. This is the only program available at the moment. There are three sites that are accepting new patients (age 18-65).

Dr. Peterson, Incline Village, Nevada (775-832-0989) Dr. Lucinda Bateman, Salt Lake City, UT (801-359-7400) Dr. Charles Lapp, Charlotte, NC (704-543-9692), It may just be Dr. Lapp at this time.

The cost of the drug is $2400 every four weeks plus physicians costs "

The alternative to go to the US to take this program, would cost me 30.000$ a year only for Ampligen, plus living cost and that would imply to quite my job and my income. Besides, Ampligen does not cure CFS, but it improves slightly the symptoms in 50% of the patients, and improves significantly the symptoms in 20% of the patients. It has to be applied intravenously, and is a long treatment that gives results in 18 months.

I called Dr. Lapp to find out whether that was possible for me to take part of that program, and after telling him all my medical history and my situation at work, he advised me to stay in Europe and contact Dr. de Meirleir in Belgium.

He told me as well that the treatment I am receiving in Spain is correct, and that in Spain there are very good specialist on this illness. Nevertheless he recommends taking a second opinion with the team of Dr. Kenny De Meirleir in Brussels, which is where I did my biological markers for CFS prescribed by my doctor in Barcelona. He mentioned 3 names in that team: Dr. Nigf, Dr De Becker and Dr. De Meirleir. Apparently in Brussels they also did administered Ampligen in the past, so I could find it more convenient to try in there instead of joining the program in the US.

He also mentioned that he expects to finish with the last phase of Ampligen in 3 to 6 months, and then it takes 9 months more to put it in the market, once the FDA approves it.

I have already booked an appointment with Dr. De Meirleir in Brussels in October, of course none of this is covered by the medical insurance, but I don't care, because I need to improve my condition. I am starting to feel depressed now with the idea that it has passed a year since I feel sick with my Epstein Barr infection and still I hold the same symptoms. Is like realizing that this has only started, and I want to search for all the help that I can to make the road easier...

It is quite frustating to wake up one day, tired, but somewhat with some energy, start to plan your day while you shower, dress up, and by the time you are ready to go out, you realize that you are exhausted. I need to lay down for another hour before I go out and do 50% of the things you planned to do.